Andrew Aidan, Our Fighting Warrior!
Andrew Aidan and his dog Beemer have been the pride and joy of their parents, Michelle & Roi ever since they were born. AA loved to take walks outside, play with his best friend Beemer and his Thomas the Tank Engine set of toys along with any other plane, helicopter, car, truck toy he can get his hand on. For those that have met him, they saw the soul of a mature adult in the body of a sweet, loving boy with a beautiful smile. He bravely battled an aggressive, inoperable, rare form of brain tumor called Atypical Teratoid Rhabdoid Tumor or AT/RT that spread to his spine as well. This type of cancer effects less than 50 children a year in this country. He has been an inspiration to us and we are sure he will be a vessel of motivation to those in similar situations. Thank you God for protecting our boy!
Andrew Aidan (R.I.P.) , Michelle (Mother), Roi (Dad) & Beemer
Saturday, February 4, 2012
Friday Evening Update
Another tough day at the hospital. AA has been a trooper through this week and we just want to tell him how much we admire and respect him for his strength and will power. He has been really swollen for the last three days throughout his face, belly, knees, legs, ankles and feet. He hasn't eaten in a week but looks like he ate a horse. Obviously something is wrong. Well after countless doctors listening to his belly and telling us that he is ok and that all he needs is to take a poop. Well after giving him countless medicine to go to the bathroom he finally did. He sure was backed up. We got an echo-cardiogram because we were worried that he was having some heart issues due to some readings seen in last week's echo-cardiogram. Thankfully after review by the doctors they saw that his heart is doing well. There are no issues and the irregularities were caused by one of his chemo meds. They will give him a pre-med for the next round to help protect his heart. This has been a frustrating week in part due to the lack of communication within the hospital and it's different departments. We understand it is a big institution with many patients and staff but they really need to take an extra minute or two to make sure that all a patients information is properly in the system and that it is readily available. We are also very appreciative of our Primary Nurse Elayne. She has been soo awesome in taking care of and knowing Andrew while also being a wonderful patient advocate. Dr. Lightner has also been wonderful in helping us advocate for AA as well as helping continue on AA's treatment plan. Found out he will might be getting some chemo tomorrow. Then an MRI on Monday and we will be starting the next round of chemo next Friday. This will be another long stay at the hospital.