Andrew Aidan, Our Fighting Warrior!

Andrew Aidan and his dog Beemer have been the pride and joy of their parents, Michelle & Roi ever since they were born. AA loved to take walks outside, play with his best friend Beemer and his Thomas the Tank Engine set of toys along with any other plane, helicopter, car, truck toy he can get his hand on. For those that have met him, they saw the soul of a mature adult in the body of a sweet, loving boy with a beautiful smile. He bravely battled an aggressive, inoperable, rare form of brain tumor called Atypical Teratoid Rhabdoid Tumor or AT/RT that spread to his spine as well. This type of cancer effects less than 50 children a year in this country. He has been an inspiration to us and we are sure he will be a vessel of motivation to those in similar situations. Thank you God for protecting our boy!

Thank You!
Andrew Aidan (R.I.P.) , Michelle (Mother), Roi (Dad) & Beemer

Friday, September 30, 2011

3 days down and 29 days to go with radiation treatment...AA's body is taking it like a champ so far...love my strong boy! He also got to enjoy his first bubble bath today since his diagnosis 3 months ago...he was loving it. Wanted to go swimming but not allowed yet...one more week :)

Thursday, September 29, 2011

AA's second day of radiation went well...he woke up quickly from the anesthesia, no nausea or vomitting, ate breakfast and took him home by 11am...way better than chemo so far :)

Wednesday, September 28, 2011

AA did GREAT today...he had his first radiation treatment and soooo far NO Nausea or Vomitting...woke up from the anesthesia and was begging for food...lol...our little hero is the BEST :)

Tuesday, September 27, 2011

AA had a great day today, slept well, ate well, walked well,played well...yup definitely was a good day. Tomorrow our baby will undergo anesthesia at 7 am as the machine is calculated for his radiation treatment to either begin tomorrow or Thursday.

Monday, September 26, 2011

Leaving Sloan with GREAT news...MRI was NEGATIVE!!! No stroke, No hydrocephalus (fluid in his brain) and No increase in tumor...they are not sure what it was....possible side effect to the chemo drug.

Sunday, September 25, 2011

Leaving the hospital now...AA did not allow them to do a CT scan without sedation and symptoms are improving so they are thinking it could have been a TIA. (I hope not) Amyway they are letting us go home and return tom for an MRI with sedation. Prays are still needed
I am going crazy right now as I am headed to Sloan....AA right side is weak...going to have a CT scan to make sure he didn't have a stroke....please pray for our son.

Saturday, September 24, 2011

My hubby shaved his head completely bald to look even more like our son....they look to cute...pictures to come later.

Friday, September 23, 2011

With a little pain medicine...AA was back to himself today...my little hero...you can't even tell he had surgery yesterday.

Thursday, September 22, 2011

We wanted to thank everyone for all your prayers...AA's surgery went well...he was in pain so they just gave him some  pain medicine...he now is sleeping comfortably..he will be discharge home  this afternoon


Wednesday, September 21, 2011

Need everyone's prayers again...AA will undergo surgery tomorrow at 730am...they will remove his central line (which was temporary) and replace it with a mediport (which is more permanent) :(

Tuesday, September 20, 2011

We had a quick day at Sloan today...no blood work...no anesthesia...just a physical and paperwork for Thursday's surgery..got to go home early :)

Monday, September 19, 2011

Although I am happy AA did great today...all done and already eating :) I am extremely sad that I saw one of AA's friends parent and they told me their son passed away...it brought tears to my eyes...he was only 2 1/2 yrs old...damn cancer :(
AA has stimulation at 10:30am where he goes under anesthesia so they can make a mask for him for his up coming radiation treatment...it is breaking my heart that he is crying so much cause he is hungry and can't eat until this is over :(

Saturday, September 17, 2011

Having a great morning...we ate breakfast at Mc Donald's where AA had 3 pancakes, a bag of sliced apples, and an orange juice...wow...now that is what I called a big appetite :)

Friday, September 16, 2011

AA had fun being home for the past 3 days, today he has blood work and did not need any transfusions, his WBC is low BUT at least he is not neutropenic. AA and the hubby finally got to meet my co-workers today, while I did some catching up..had a great time...miss my girls:)

Tuesday, September 13, 2011

Just received a call from AA's doctor.... she let us know that his Lumbar Puncture results are NEGATIVE....I have happy tears rolling down my face right now:). Thank you God and everyone for your prays.

Monday, September 12, 2011

Good news: today's blood work showed that AA does not need any transfusion and we do not have to be back until Friday. We are still waiting for the lumbar puncture results :( Continuing to pray that it it good news.

Friday, September 9, 2011

Lumbar puncture went well...AA jumped up right up after the procedure ready to eat and walk around...results will be in on Monday. At least his blood work showed that he did not need any transfusions...on our way home to enjoy our weekend with our beautiful big boy!!! Thank you all for your prayers!

Thursday, September 8, 2011

Alright everyone...I need your prayers again. AA is having a lumbar puncture tomorrow to make sure the cancer has not spread to his spine...no tumors showed up in the today's MRI so praying to GOD it will be negative also.
MRI results could of shown:
1) tumor completely gone
2) tumor smaller & Nero Surgeon comfortable to go in & remove the rest of the tumor
3) tumor smaller but Neuro Surgeon not comfortable to go in & remove the rest
4) tumor is not shrinking

AA's MRI results show #3....we would of loved for it to be #1 or #2 but are extremely happy and thanking God that it is not #4

Wednesday, September 7, 2011

Everyone's prayers and positive energy is needed...tomorrow AA will have a MRI at 730am to see if the second round of chemo worked and if it did how much did it work.
So happy...received a phone call from Sloan...they collected MORE than enough stem cells this time around so we do not have to go to the hospital today :)

Tuesday, September 6, 2011

So we found out today that AA is no longer neutropenic and so as promised took him to burger king before coming home tonight...he ate one and a half cheeseburgers with two apple juices...lol...I don't even eat that much!!!
8 hours later...we are finally on our way home. AA did great today...slept throughout most of the stem cell harvest...praying they collected enough so we do not have to come back tom for more collection...will find out tom morning if we need to come in or not...also happy to hear my mom is discharged from the hospital today:)

Monday, September 5, 2011

I am so glad I sent my mom for a CXR yesterday....her asthma was so bad she hot admitted to the hospital...went to see her today and she looked good...she was mote concern about AA...thank God both AA and mom are doing good today.

Sunday, September 4, 2011

AA had a good day yesterday and is having a better one today...just ate a whole slice of pizza by himself :)

Friday, September 2, 2011

AA tolerated chemo like a champ today...get to go home now and return on Tuesday...hoping he doesn't get a fever....this will be a long weekend at home with AA..YES!!!!

Thursday, September 1, 2011

Although AA needed platelet transfusion today...he looks way better than yesterday...walking around and playing :)