AA LeGar the Pirate. Arrgghh!!!

Halloween means there are are just five more days of radiation treatment. YESSS!

Hope fully this is our first and last Halloween at the hospital today. After today five more days left. Thanks again everyone for the support. We took some time off this weekend to just being together as a family and be low key and it was great. That is why we didnt post with our normal frequency.  Roi

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Kind Regards,

Roi LeGar

Please Read from German Baez the Marathon Participant!

I just wanted to share this with everyone. Thanks!

German Baez has left a new comment on your post "Run For A Cause! Let's Show Our Support For Team A...":

Hi all. I am the one running this marathon. First and foremost, let us all pray and hope for a full recovery for Andrew Aidan. As for my run, I was going to run it anyway but the best thing I ever did was to decide to use my run to help out this wonderful boy and his dedicated family. So I hope you can help me to raise some money for them. They deserve it. Some charities, you have no idea where the money is going. With this personal approach there is no doubt that the family will control the funds and use them for Andrew Aidan's benefit. I expect the run to be tough but there is no doubt I will be fueled by your generosity and compassion every step of the way. I have never run a marathon. So I am not sure how I will make out...walk, run, crawl...but I will finish! Thanks!

Posted by German Baez to Andrew Aidan LeGar at October 26, 2011 10:40 AM

Just 8 More Days

Good day of radiation treatment. Things are so far are looking up and we only have 8 more treatment days.Roi

breakfast after radiation. yummy

Radiation is coming to an end. Soon.

We are almost there at the end of radiation. Yesterday was a bit hectic here at the hospital but Mondays usually are. Today is much more peaceful and flowing well. Our little man is doing just great. He has really been enjoying himself. 
Roi

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Kind Regards,

Roi LeGar

Marathon Flyer

Hello everyone!
If any one would like to spread the word with the mararthon
fundraising event we are having on Nov. 6th when German runs for AA in
the NYC marathon and would like to print the flyer in order to post at
their job, school or house of worship, please feel free to do so. If
this is the case please email me in order to email you the PDF high
resolution version of the flyer for printing.
Thanks.
Roi

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Kind Regards,

Roi LeGar

Day 16 of 28. Almost done with RT!

Almost done with radiation we are on day 16 of 28 days. Then a bunch
of test until we start chemo in Dec. Lets pray that the tumor is
completely gone when we get his full MRI done on Nov. 28 the doctors
say that is the best case scenario after radiation. Please keep the
prayers and meditation coming. It is working. Roi

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Kind Regards,

Roi LeGar

Grocery Shopping with Papa

Shopping is always special when you are with SPECIAL people!

Run For A Cause! Let's Show Our Support For Team AA in The ING NYC Marathon!

Circus Time for AA!

14 more days to go with the Radiation Therapy...Yesterday and today went well for AA. He is now working on taking his nap but seems to want to sing some songs in his crib first. lol. Got a nice gift from the hospital yesterday, they gave us 3 tickets to go see the Big Apple Circus on Sunday Lincoln Center. We thought that was cool and are looking forward to taking him..

Roi

AA's First Concert

Andrew went to his first concert today, a live show of "Yo Gabba Gabba" at the Beacon Theatre. He loved it. Glad he had a good day.
Roi

On our way home from the Bronx Zoo, thanks to Starlight organization for allowing us to have a great time for free...pictures to come.

Alarm Clocks and Apple Juice

Radiation therapy did not happen today. It was my fault actually, I did not hear my alarm clock and when I got AA ready I let him play for a minute while I finished getting ready. Little did I know that there was a box of apple juice on his train table that he ran for immediately, by the time I got to him he had already had some juice. I had to call the hospital and they cancelled the therapy because it could be fatal if he goes into sedation with fluid or food in his system. We will be back on Monday. Sorry AA, Sorry hun..
Roi

My Musicians

Day 11 of 28

Day 11 of Radiation is all said and done. Last day of radiation is on Nov. 4th for a total of 28 sessions. So happy to be home with the big man. We had a pretty easy day at the hospital and got home in time for him to take a nice and long nap. He went to bed at 12:30pm and it's now 3:10pm and he is still sleeping. He should be up soon. Looking forward to picking Mommy up later! Hope everyone is having a great Wednesday and once again thank you soo much for the positive vibes. We really do appreciate them because they are working.
Roi

AA had another good day :) My hubby and I had a better day than yesterday :) We found out AA will start chemo again on Dec 8...this way he could celebrate his 2nd birthday :)

AA had a good day...tolerated radiation well :) My husband and I didn't have such a good day...hubby broke down in the hospital and I can't seem to stop crying since I got home...although AA is doing well (we thank God everyday for it) reality is that our son is still fighting for his life and it hurts so much to face reality. God please give my child, husband and myself the strength we need to get through this horrible experience.

AA had a great weekend. Saturday my little Picasso drew all over his godparents washer (thank goodness he used washable markers) lol On Sunday he enjoyed a dinner plate at my parents house as big as mine (he finishes his and I didn't) lol

AA did well yesterday and today with the radiation therapy...one week down 5 more to go :( Yet I am very happy he is doing so well...strongest little man I know :)

Another day of radiation for AA. Today is day 6 of 32.One step closer to getting him disease free. Thanks again to everyone for your support...
Roi & AA

AA had a great day...radiation went smoothly, got home early then went to see his BFF (Beemer) get a blessing by our favorite priest Father Jack in the same church he was baptized (Our Lady of Fatima)...I wish I could have been there with my family.

AA had a good day with my hubby yesterday. AA's blood work showed a couple of his levels were low BUT at least he did not need any transfusion :) I also had a good day at work as well...glad to see my co-workers. I hope we all have a fabulous day today again :)

AA had a great weekend..he got to spend quality time with his grandma Yvette :) Today is my first day back to work...I thought I would be a mess having to leave my beautiful son but my mom gave me a pep talk and so feel ok....I know he is in great hands with my hubby who had to leave school to take care of AA but we are both doing the best we can to provide the best care for our little hero :) We love you AA...mommy is going to work so you can have health insurance and will be in walking distance to the hospital :)