Best Wishes to All the Runners Today, Especially German

 

Please join us to support him we will be meeting with him by Court Sq in Queens. he starts his run @ 10:45am.
Call Roi if you want further details 917-617-8053.
See You There...

Three days left

Hope all is well. We are excited to say we have 3 days of radiation left. Also, if you get a chance press PLAY on the song player just to the left of this post and you can hear the song that songwriter Lanny Shermin wrote for AA in colaboration with the Song of Love Foundation. It is awesome. Thanks.    

--
Kind Regards,

Roi LeGar

AA LeGar the Pirate. Arrgghh!!!

Halloween means there are are just five more days of radiation treatment. YESSS!

Hope fully this is our first and last Halloween at the hospital today. After today five more days left. Thanks again everyone for the support. We took some time off this weekend to just being together as a family and be low key and it was great. That is why we didnt post with our normal frequency.  Roi

--
Kind Regards,

Roi LeGar

Please Read from German Baez the Marathon Participant!

I just wanted to share this with everyone. Thanks!

German Baez has left a new comment on your post "Run For A Cause! Let's Show Our Support For Team A...":

Hi all. I am the one running this marathon. First and foremost, let us all pray and hope for a full recovery for Andrew Aidan. As for my run, I was going to run it anyway but the best thing I ever did was to decide to use my run to help out this wonderful boy and his dedicated family. So I hope you can help me to raise some money for them. They deserve it. Some charities, you have no idea where the money is going. With this personal approach there is no doubt that the family will control the funds and use them for Andrew Aidan's benefit. I expect the run to be tough but there is no doubt I will be fueled by your generosity and compassion every step of the way. I have never run a marathon. So I am not sure how I will make out...walk, run, crawl...but I will finish! Thanks!

Posted by German Baez to Andrew Aidan LeGar at October 26, 2011 10:40 AM

Just 8 More Days

Good day of radiation treatment. Things are so far are looking up and we only have 8 more treatment days.Roi

breakfast after radiation. yummy

Radiation is coming to an end. Soon.

We are almost there at the end of radiation. Yesterday was a bit hectic here at the hospital but Mondays usually are. Today is much more peaceful and flowing well. Our little man is doing just great. He has really been enjoying himself. 
Roi

--
Kind Regards,

Roi LeGar

Marathon Flyer

Hello everyone!
If any one would like to spread the word with the mararthon
fundraising event we are having on Nov. 6th when German runs for AA in
the NYC marathon and would like to print the flyer in order to post at
their job, school or house of worship, please feel free to do so. If
this is the case please email me in order to email you the PDF high
resolution version of the flyer for printing.
Thanks.
Roi

--
Kind Regards,

Roi LeGar

Day 16 of 28. Almost done with RT!

Almost done with radiation we are on day 16 of 28 days. Then a bunch
of test until we start chemo in Dec. Lets pray that the tumor is
completely gone when we get his full MRI done on Nov. 28 the doctors
say that is the best case scenario after radiation. Please keep the
prayers and meditation coming. It is working. Roi

--
Kind Regards,

Roi LeGar

Grocery Shopping with Papa

Shopping is always special when you are with SPECIAL people!

Run For A Cause! Let's Show Our Support For Team AA in The ING NYC Marathon!

Circus Time for AA!

14 more days to go with the Radiation Therapy...Yesterday and today went well for AA. He is now working on taking his nap but seems to want to sing some songs in his crib first. lol. Got a nice gift from the hospital yesterday, they gave us 3 tickets to go see the Big Apple Circus on Sunday Lincoln Center. We thought that was cool and are looking forward to taking him..

Roi

AA's First Concert

Andrew went to his first concert today, a live show of "Yo Gabba Gabba" at the Beacon Theatre. He loved it. Glad he had a good day.
Roi

On our way home from the Bronx Zoo, thanks to Starlight organization for allowing us to have a great time for free...pictures to come.

Alarm Clocks and Apple Juice

Radiation therapy did not happen today. It was my fault actually, I did not hear my alarm clock and when I got AA ready I let him play for a minute while I finished getting ready. Little did I know that there was a box of apple juice on his train table that he ran for immediately, by the time I got to him he had already had some juice. I had to call the hospital and they cancelled the therapy because it could be fatal if he goes into sedation with fluid or food in his system. We will be back on Monday. Sorry AA, Sorry hun..
Roi

My Musicians

Day 11 of 28

Day 11 of Radiation is all said and done. Last day of radiation is on Nov. 4th for a total of 28 sessions. So happy to be home with the big man. We had a pretty easy day at the hospital and got home in time for him to take a nice and long nap. He went to bed at 12:30pm and it's now 3:10pm and he is still sleeping. He should be up soon. Looking forward to picking Mommy up later! Hope everyone is having a great Wednesday and once again thank you soo much for the positive vibes. We really do appreciate them because they are working.
Roi

AA had another good day :) My hubby and I had a better day than yesterday :) We found out AA will start chemo again on Dec 8...this way he could celebrate his 2nd birthday :)

AA had a good day...tolerated radiation well :) My husband and I didn't have such a good day...hubby broke down in the hospital and I can't seem to stop crying since I got home...although AA is doing well (we thank God everyday for it) reality is that our son is still fighting for his life and it hurts so much to face reality. God please give my child, husband and myself the strength we need to get through this horrible experience.

AA had a great weekend. Saturday my little Picasso drew all over his godparents washer (thank goodness he used washable markers) lol On Sunday he enjoyed a dinner plate at my parents house as big as mine (he finishes his and I didn't) lol

AA did well yesterday and today with the radiation therapy...one week down 5 more to go :( Yet I am very happy he is doing so well...strongest little man I know :)

Another day of radiation for AA. Today is day 6 of 32.One step closer to getting him disease free. Thanks again to everyone for your support...
Roi & AA

AA had a great day...radiation went smoothly, got home early then went to see his BFF (Beemer) get a blessing by our favorite priest Father Jack in the same church he was baptized (Our Lady of Fatima)...I wish I could have been there with my family.

AA had a good day with my hubby yesterday. AA's blood work showed a couple of his levels were low BUT at least he did not need any transfusion :) I also had a good day at work as well...glad to see my co-workers. I hope we all have a fabulous day today again :)

AA had a great weekend..he got to spend quality time with his grandma Yvette :) Today is my first day back to work...I thought I would be a mess having to leave my beautiful son but my mom gave me a pep talk and so feel ok....I know he is in great hands with my hubby who had to leave school to take care of AA but we are both doing the best we can to provide the best care for our little hero :) We love you AA...mommy is going to work so you can have health insurance and will be in walking distance to the hospital :)

3 days down and 29 days to go with radiation treatment...AA's body is taking it like a champ so far...love my strong boy! He also got to enjoy his first bubble bath today since his diagnosis 3 months ago...he was loving it. Wanted to go swimming but not allowed yet...one more week :)

AA's second day of radiation went well...he woke up quickly from the anesthesia, no nausea or vomitting, ate breakfast and took him home by 11am...way better than chemo so far :)

AA did GREAT today...he had his first radiation treatment and soooo far NO Nausea or Vomitting...woke up from the anesthesia and was begging for food...lol...our little hero is the BEST :)

AA had a great day today, slept well, ate well, walked well,played well...yup definitely was a good day. Tomorrow our baby will undergo anesthesia at 7 am as the machine is calculated for his radiation treatment to either begin tomorrow or Thursday.

Leaving Sloan with GREAT news...MRI was NEGATIVE!!! No stroke, No hydrocephalus (fluid in his brain) and No increase in tumor...they are not sure what it was....possible side effect to the chemo drug.

Leaving the hospital now...AA did not allow them to do a CT scan without sedation and symptoms are improving so they are thinking it could have been a TIA. (I hope not) Amyway they are letting us go home and return tom for an MRI with sedation. Prays are still needed

I am going crazy right now as I am headed to Sloan....AA right side is weak...going to have a CT scan to make sure he didn't have a stroke....please pray for our son.

My hubby shaved his head completely bald to look even more like our son....they look to cute...pictures to come later.

With a little pain medicine...AA was back to himself today...my little hero...you can't even tell he had surgery yesterday.

We wanted to thank everyone for all your prayers...AA's surgery went well...he was in pain so they just gave him some  pain medicine...he now is sleeping comfortably..he will be discharge home  this afternoon

Need everyone's prayers again...AA will undergo surgery tomorrow at 730am...they will remove his central line (which was temporary) and replace it with a mediport (which is more permanent) :(

We had a quick day at Sloan today...no blood work...no anesthesia...just a physical and paperwork for Thursday's surgery..got to go home early :)

Although I am happy AA did great today...all done and already eating :) I am extremely sad that I saw one of AA's friends parent and they told me their son passed away...it brought tears to my eyes...he was only 2 1/2 yrs old...damn cancer :(

AA has stimulation at 10:30am where he goes under anesthesia so they can make a mask for him for his up coming radiation treatment...it is breaking my heart that he is crying so much cause he is hungry and can't eat until this is over :(

Having a great morning...we ate breakfast at Mc Donald's where AA had 3 pancakes, a bag of sliced apples, and an orange juice...wow...now that is what I called a big appetite :)

AA had fun being home for the past 3 days, today he has blood work and did not need any transfusions, his WBC is low BUT at least he is not neutropenic. AA and the hubby finally got to meet my co-workers today, while I did some catching up..had a great time...miss my girls:)

Just received a call from AA's doctor.... she let us know that his Lumbar Puncture results are NEGATIVE....I have happy tears rolling down my face right now:). Thank you God and everyone for your prays.

Good news: today's blood work showed that AA does not need any transfusion and we do not have to be back until Friday. We are still waiting for the lumbar puncture results :( Continuing to pray that it it good news.

Lumbar puncture went well...AA jumped up right up after the procedure ready to eat and walk around...results will be in on Monday. At least his blood work showed that he did not need any transfusions...on our way home to enjoy our weekend with our beautiful big boy!!! Thank you all for your prayers!

Alright everyone...I need your prayers again. AA is having a lumbar puncture tomorrow to make sure the cancer has not spread to his spine...no tumors showed up in the today's MRI so praying to GOD it will be negative also.

MRI results could of shown:
1) tumor completely gone
2) tumor smaller & Nero Surgeon comfortable to go in & remove the rest of the tumor
3) tumor smaller but Neuro Surgeon not comfortable to go in & remove the rest
4) tumor is not shrinking

AA's MRI results show #3....we would of loved for it to be #1 or #2 but are extremely happy and thanking God that it is not #4

Everyone's prayers and positive energy is needed...tomorrow AA will have a MRI at 730am to see if the second round of chemo worked and if it did how much did it work.

So happy...received a phone call from Sloan...they collected MORE than enough stem cells this time around so we do not have to go to the hospital today :)

So we found out today that AA is no longer neutropenic and so as promised took him to burger king before coming home tonight...he ate one and a half cheeseburgers with two apple juices...lol...I don't even eat that much!!!

8 hours later...we are finally on our way home. AA did great today...slept throughout most of the stem cell harvest...praying they collected enough so we do not have to come back tom for more collection...will find out tom morning if we need to come in or not...also happy to hear my mom is discharged from the hospital today:)

I am so glad I sent my mom for a CXR yesterday....her asthma was so bad she hot admitted to the hospital...went to see her today and she looked good...she was mote concern about AA...thank God both AA and mom are doing good today.

AA had a good day yesterday and is having a better one today...just ate a whole slice of pizza by himself :)

AA tolerated chemo like a champ today...get to go home now and return on Tuesday...hoping he doesn't get a fever....this will be a long weekend at home with AA..YES!!!!

Although AA needed platelet transfusion today...he looks way better than yesterday...walking around and playing :)

I can't wait until my son is no longer neutropenic. I cried all morning as AA laid on the bed for 3 hours watching cartoons not moving much as he looked so weak. After his 3 hr nap he woke up with a little more energy. Took him for a walk with my sister and got to see my mother and brother in law...so glad they got to see AA...they missed him so much.

AA had a good day yesterday and today :). Went to Sloan today....no transfusions needed :) But is completely neutropenic :( Germs stay away from my son!!!

Since AA is stable he doesn't have to go to Sloan tomorrow....yeah we have one day off...wish my hubby was off from school but at least he was off this weekend and we all got to spend it together :)

Before my son got diagnosed I was the type of mom that didn't allow him to eat fast food, any type of junk food including candy, or even juice (besides his one cup of OJ for breakfast) today he ate a cheeseburger with fries, apple juice (from Mc Donald's) and a lollipop and I am the happiest mom to see that he enjoyed his lunch without throwing up.  The nutritionist said that during the week of chemo allow him to eat whatever he wants and so I do :)

AA had a rough night with nausea then when I gave him anti nausea medicine and he threw it all up ;( At Sloan now waiting for chemo to start...threw up here again so they just gave him medicine by IV...his happetite has also been bad the last 4 days :(

So happy to be finally home after 1 long week at the hospital....AA tolerated the blood transfusion well today and now is running around the house touching and playing with everything in sight....he looks so happy to be home again. Beemer is also happy to have join us at home as well:)

Ok...so there is a delay in discharging AA home...he will need a blood transfusion...they are premedicating him now :(

Yessssssss!!!!! Chemo with rescue drug is finally over and AA had no allergic reaction this time....God is good :) IV Fluids tonight and lots of blood work tomorrow then home by the afternoon....I hope :)

AA is resting comfortably right now as they started the rescue drug....will be staring at him as I pray for the next 8 hours

Getting a little nervous as we wait for AA to get his last chemo for this admission. Since he had such a severe reaction (anaphylactic) to the rescue drug the last time...they are setting up emergency equipment in his room, and they are premedicating him to try to prevent any reaction. They decided to keep him until tomorrow afternoon just to make sure he is ok for 24hrs after receiving this med. Then back on Friday for outpatient chemo and home this weekend.

Bonding with my dad as we both donate blood for our favorite little man...we love you AA!!!

AA tolerated chemo like a champ today...didn't eat breakfast or lunch but at least he hasn't thrown up, drank 3 bottles of milk, and made it up with a good dinner :)

Central Line is in his left upper chest area and correct placement was confirmed ...first chemo just started now.

I am a big ball of mess as my baby went to get a central line placed and the Broviac removed :(

After crying for hours I have no choice but to accept the fact that Sloan does not carry the proper equipment to fix my son's Broviac so now he will need two surgical procedures. The first one will be tomorrow to place a temporary port then in a couple of weeks to place the permanent one.

What a night.... I haven't slept since AA woke up at 2 am and went back to sleep at 4 am where he was immediately woken up by his nurse....long story short his Broviac (where he get chemo,IVF, blood work) is not working....they put a temporary line in his hand which already fell out and Surgery was called to see if they can fix it....I am sleep deprived and now freaking out about possible surgery to put a new Broviav in...so stressed.

Had a good day although for the past couple of hours his body temperature is on the low side so they are checking it more frequently....snuggling next to him giving him body heat and praying it is nothing.

As I snuggle next to my baby I thank the LORD for a great day...1st day of chemo over and he has not vomitted once...the anti nausea meds are actually working so far :)

As I watch my son having fun with his BFF and all his cars....I can't help to break down....I am hurting so much now as I know what a rough week his has a head of him....I haven't broken down like this in almost 2 weeks....GOD please help me be strong for my son that needs me.

-Michelle

AA passed his hearing test today (yes chemo has not affected his hearing) and he is no longer neutropenic so his BFF comes home tonight (see u after your bath Beemer) 2nd round of chemo got delayed until Friday so we get to enjoy both of our boys tonight and tomorrow all day :)

Another great day at home resting before the storm because cycle 2 of chemo starts tomorrow. Blood test and hearing test before chemo. Looking forward to the end result.

-Michelle

AA is still neutropenic so have to give him an injection in his leg today and tomorrow to bring up his levels :( The good news is that he has not lost any weight and ONLY 10-20 percent of children receiving chemo actually grow...AA grew an inch...that's my little man :)

-Michelle

Sunday!

An other good day at home. AA was really happy today and being real playful. He ate well, probably the best since we have started this chemo therapy. So happy to have our little boy acting like his normal self. We love you...

Saturday

AA had a good day today! Was walking outside with Dad on his own and also walking all over the house as well! His appetite is almost where it used to be and we are trying to get him as heavy as we can before the 2nd round of chemo starts on Wednesday! We are happy to see him like his old self ! 

AA's blood pressure was VERY low during the stem cell collection so they stopped it until they got it to be stable and then was able to be finished. Unfortunately, they were not successful in collecting enough stem cells so AA has to repeat this in one month :( He also needs a blood transfusion today :( On a positive note, he was a champ during both procedure :)

-Michelle

Today couldn't have ended any better. AA did not have any reaction to the platelet transfusion, his kidney test showed that the chemo has not affected his kidneys, and he started to walk on his own again... LORD you have blessed us with a fabulous day!!!

-Michelle

They will collect AA's stem cells tomorrow for future bone marrow transfusions so genus getting platelet transfusion nowto boost him up for tomorrow's procedure... they pre medicated him to decrease the risk of having a reaction to the platelet transfusion...praying he does well.

-Michelle

Today's MRI results are GREAT!!! Brain surgery for the hydrocephalus is still working and the tumor is already shrinking...THANK U LORD for not abandoning us :)

-Michelle

Your Help Is Needed

Thank you so much to those of you that have helped us to date! We truly appreciate the support!

Enjoyed AA's day off yesterday as he walked a bit more and had fun at Astoria park watching the skaters fall down. At Sloan now waiting for the nurse to give him chemo :( At least he doesn't need any transfusion :)

-Michelle

Today was an exhausting yet positive day. Started with Father Jack coming to our house and give AA and us a special blessing. (Finally felt at peace with God) Arrives at Sloan where AA got blood work (did not need blood or platelet transfusion although he is still neutropenic) Got a CT of the head done (showed surgery is still working) By the time he was evaluated by Neuro, he was already starting to walk on his on (they suggest a repeat MRI later this week to determine the cause of his symptoms on Sunday).

-Michelle

Sat was an ok day for AA didn't throw up once and started to eat better :) Sun started odd the same until I realized that he couldn't walk again and started to have sunsetting eyes again, cried all morning and afternoon then made the clinical decision to remove the ace bandage from his head and switch his neurologist from LIJ to Sloan. I need all of AA's doctors to be on the same page in order to provide our son the best quality of care.

-Michelle

Happy to bring AA home today...did not need any blood or platelet transfusion BUT so sad that he is now neutropenic (has zero immunity to fight off any infections). Praying to GOD he does not come down with a fever or an infection...do not want him to get admitted to the hospital...he is so happy at home....LORD please help us!

-Michelle

Please Help Andrew Aidan!

Leaving the neurologist office with a smile...AA does not need a shunt for now (praying he never needs one) just need to have his head wrapped with an ace bandage for two weeks which should resolve the fluid collection in his forehead. :)

-Michelle

AA had a good day yesterday...only vomitted one time and took all his meds :) At the neurologist now...I pray to God that everything goes well here then headed to Sloan to see If AA needs a blood transfusion...I pray that he does not

-Michelle

We are sooooooo happy to finally bring our son home after receiving chemo today. He is so happy to be home as well...can't stop smiling. He is going nuts playing with all the new cars his God Parents (Frank & Kathy) brought him..thank you guys for putting a smile on his face.

-Michelle

The biggest luck we have had with this whole ordeal is that her great medical sense caught the tumor in its very initial stages. I love her so much for that.

Very thankful for a beautiful day of life that allows us to continue this fight for AAs life. Very thankful of my wife for being such a great practitioner

Today was an ok day. AA only vomitted once and his Neuro Opth appt went well. MRI results was not not bad nor good....ugh! Results are being sent to AA's Neuro Surgeon in LIJ and an appt was set up for this Fri after it is compared to his previous MRI. (praying really hard)

-Michelle

Please Help Andrew Aidan!

Positive energy=Positive results=beating the hell out of cancer.

In human nature there are people that settle . Settle for what life gives them. Against cancer you can not settle. You Fight until you get your way. Never quit

Yesterday was a better day for AA. Two new chemo were given and he did pretty well. Had a little reaction to one rescue medicine but doctors figured it out.

Good morning. Today we stand up once again to fight against cancer. It invaded our family a month ago and we look forward to the day when we are the victors.

Today has been one of those long days that all I did was cry. It started off this AA's Neuro Surgeon requesting an immediate MRI because there is a possibility that one of the brain surgeries done on him is no longer working and therefore if it is true,he will go back into the OR to have a shunt placed, to help drain the fluid in his brain. MRI is scheduled for tomorrow at 10am. Then AA ends up having a bad allergic reaction to one of the medications that was given to him. This medication was not one of the chemo meds but a rescue med (medication to preserve his kidney and other organs) being that he really needed the doctors chose to premedicate him with all these other meds to prevent another reaction and 30 mins later start the rescue med again

-Michelle

Thank You For Spreading The News!

We appreciate the sharing of AA's condition as we strive to help him and the other children with this condition!
Page views by Countries

United States 572
Ireland 14
Netherlands 7
Puerto Rico 6
Sweden 3
Germany 1
Ecuador 1
United Kingdom 1
Malaysia 1

Please Help Andrew Aidan!

Technical Difficulties

Family Pictures @ Sloan

Roommate Issues

AA had an ok day with chemo day 2. He ate extremely little and threw up one time so far. So glad I have not left his beside as I had to advocate for our son today. I found out his roomate had pneumonia...so I flipped out and made sure she got taken out of our son's room immediately.

Weekend at the hospital

As ok as I can be...AA and I have not left the hospital since Friday morning....he just received his chemo again today...waiting for his lab work to come back before he gets the second one.

Not Bad after a Chemo Day! This Kid Is One Tough Cookie!

Watching Bob
The Builder

And He's Off!

The Wheels on
The Bus...

36 minutes ago via Facebook Mobile 

Feeling Happy!

Feeling happy...AA had a good day today :) He had chemotherapy and although his appetite is not great, at least he has eaten and has not thrown up since yesterday.

36 minutes ago via Facebook Mobile

Looking brighter!

AA has not vomited since yesterday....poor baby is on 3 different anti nausea medications around the clock....I hope it continues to work as his chemo went up 30 mins ago

9 hours ago via Facebook Mobile

The LeGar Family

Sleeping With Dad

Watching TV in My Room with My Mom

My foot rest!

Mobile Uploads

July 15 at 9:26pm via Facebook Mobile

Has never lost his smile...was on the way to LIJ emergency room...July 3rd

Mobile Uploads

July 16 at 7:45am via Facebook Mobile ·

Best Friends For Life!

Mobile Uploads

July 16 at 9:45am via Facebook Mobile 

Loving my new hair cut

Mobile Uploads

July 17 at 11:59am via Facebook Mobile 

Love my 3 boys!!!

Mobile Uploads

July 18 at 9:13am via Facebook Mobile 

AA enjoying a lollipop his grandma Yvette sent him

Mobile Uploads

July 20 at 10:10pm via Facebook Mobile

Feeding himself lunch :)

Feeding himself lunch :)

Mobile Uploads

July 23 at 12:16pm via Facebook Mobile 

Andrew Aidan Happy To Go Home!

Andrew Aidan Happy  To Go Home!

July 26 at 9:32am

5 hours ago via Facebook Mobile

AA has not vomited since yesterday....poor baby is on 3 different anti nausea medications around the clock....I hope it continues to work as his chemo went up 30 mins ago

5 hours ago via Facebook Mobile 

15 hours ago via Facebook Mobile

AA didn't have such a good day yest....threw up all day despite the three anti nausea medications he received. I couldn't help to break down as I saw my son so weak and helpless. Then got admitted last night at 7pm...they decided to medicate him around the clock with the 3 anti nausea medications since he will get chemo again today. He is now resting comfortably next to me as I am praying he has a better day tom.

15 hours ago via Facebook Mobile 

Bob and Baby Bob; Thursday at 11:57am via Facebook Mobile

Bob and baby bob

Mobile Uploads

Thursday at 11:57am via Facebook Mobile