Andrew Aidan, Our Fighting Warrior!

Andrew Aidan and his dog Beemer have been the pride and joy of their parents, Michelle & Roi ever since they were born. AA loved to take walks outside, play with his best friend Beemer and his Thomas the Tank Engine set of toys along with any other plane, helicopter, car, truck toy he can get his hand on. For those that have met him, they saw the soul of a mature adult in the body of a sweet, loving boy with a beautiful smile. He bravely battled an aggressive, inoperable, rare form of brain tumor called Atypical Teratoid Rhabdoid Tumor or AT/RT that spread to his spine as well. This type of cancer effects less than 50 children a year in this country. He has been an inspiration to us and we are sure he will be a vessel of motivation to those in similar situations. Thank you God for protecting our boy!

Thank You!
Andrew Aidan (R.I.P.) , Michelle (Mother), Roi (Dad) & Beemer

Friday, November 18, 2011

AA's Mass For The Living-Please Confirm Attendance

Hope every one is having a wonderful Friday. Just want to remind everyone that there is a private Mass For The Living for AA and it is happening the Saturday after Thanksgiving. All The information is below or on the right hand side of the blog. If anyone would like to see us all and wish us luck and join us in prayer as we begin the next phase of chemo this would be a great time to do so. At this point we are requesting that those that would like to come, to please let us know that you are coming via e-mail. We need a confirmation because Michelle's mother & father, Alicia & Hector, will be providing refreshments and snacks afterwards and they would not want to over buy or fall short of items for all our lovely friends and family. We look forward to seeing you soon. Have a great day!
Please e-mail us at:
Michelle: m.legar@gmail.com
Roi: r.legar@gmail.com

Roi

Thursday, November 17, 2011

Happy Thursday Everyone

Hello Everyone! Hope you are all having a great week. We are soooo happy to have this time off from the hospital. AA has been doing much better this week. He has been acting like himself again, playing, talking, he even picked up a couple of new words, like purple, scissors and done. He has been getting occupational therapy, physical therapy, speech therapy and special instruction. His therapy has been productive and he seems to be liking his therapists much more than when they started working with him three weeks ago. On another note he started to eat like himself again since yesterday, we are so happy since the last two weeks he was not eating his normal diet.

Monday, November 14, 2011

AA Loves Basketball

I just wanted to share this cool video of AA running around in the school park by our house. He was having a great time and really got a kick out of watching a guy play basketball. He really does show off the set of lungs that he has. I guess like father like son. I must warn you that you will have to lower the volume on your speakers if you are at work. He really does give Pavarotti a run for his money.
Roi

Thank You

Thanking my wonderful mother and sister for putting together the flea market to raise money for AA. It was successful due to the help of friends and family...in particularly my dad, my aunt Maruja,my cousin Lilly Villacis, Teresa Santos and her husband. Thanking every since person that attended the event. We also wanted to thank everyone from Jack Resnick & Sons that contributed to German's run for AA. Thank you!
Michelle & Roi

Saturday, November 12, 2011

Flea Market

Hello Friends & Family,
Michelle’s mom and sister will be participating in a Flea Market this upcoming Sunday in an attempt to raise awareness of Andrew Aidan’s brain tumor.

The flea market information is below:
Our Lady of Fatima Roman Catholic Church
25-02 80th Street East Elmhurst, NY 11370

Directions by bus or train: 7 Train or E or F Train to Roosevelt Avenue then take the Q-47 bus to 80th Street & 25th Avenue.
When: Sunday November 13th, 2011 from 9am-5pm
Who: Please look for Alicia, Hector, Maruja & Stephanie at table 19.

Let’s raise awareness to help Andrew & other children with AT/RT.

Meeting German & ALL the Wonderful Jack Resnick & Sons Team

AA & and I had the pleasure of meeting German, AA's Marathon runner, his wife Maria and all of the GREAT team at Jack Resnick & Sons. We truly appreciate the help that they gave us while showing an AMAZING amount  of support. It was an amazing experience. Please enjoy the pictures.
Roi
Jack Resnick & Sons Team

AA with Teddy Bear given to him by German

Jack Resnick & Sons Team

Get Well Card Outside Cover

Get Well Soon Card Inside

Posting by German 2 days after the marathon. Please read!

Thanks to the LeGar's (dog included) for coming out to support me and all the runners in this years NYC Marathon. Andrew is such a handsome little man! And the signs were great! The marathon was a great success and I look forward to running it again next year. The fundraising has gone very well. I expect to finish collecting all the funds before Friday. I was amazed by all the support I received for this cause. What is most important is that Andrew recovers from this battle. Money will not do this...but hopes and prayers and believing can! So let's keep thinking of AA and let's keep pulling for him.

Tuesday, November 8, 2011

Note about Internet Browsers

Hello Everyone,
It has come to our attention that certain aspects of our blog are not functioning properly. After reviewing some settings it may be an issue with Internet Explorer. I suggest trying Google Chrome. For some reason the blog works fine with Chrome and does not suffer the occasional temper tantrums that are faced with Internet Explorer. Chrome is really easy to install and best of all it's free. Search for Google Chrome and select the option to install it on your PC. Once installed you should enjoy our blog once again.


Sincerely,
AA's Blog HUGE Tech Support Department of ONE Person.
His DAD

PS. He is currently training for a position here in the Tech Department. ;-)

2011 Halloween Pictures

Here are the pictures as promised of our two little pirates!











Nature Time

nature feels great after radiation

Monday, November 7, 2011

2011 NYC Marathon Pictures #3







2011 NYC Marathon Pictures #2








2011 NYC Marathon Pictures #1






2011 NYC Marathon Pictures & Radiation is FINISHED!!!

Hello everyone,
GREAT news! Today was our LAST day of radiation and we are SOO HAPPY! Our little trooper made it through this phase of treatment. Next up: Chemo in Dec. We will worry about that when that day comes! For now we will enjoy the time off.
In regards to the marathon, WE had a great time! AA was so happy to see all the runners running for some great causes. We would like to thank German for running with AA as his cause.
Enjoy the Pictures as they come in the next couple of postings.

Roi

Sunday, November 6, 2011

Go German Go!

Best Wishes to All the Runners Today, Especially German

 



Please join us to support him we will be meeting with him by Court Sq in Queens. he starts his run @ 10:45am.
Call Roi if you want further details 917-617-8053.
See You There...
Posted by Picasa

Wednesday, November 2, 2011

Three days left

Hope all is well. We are excited to say we have 3 days of radiation left. Also, if you get a chance press PLAY on the song player just to the left of this post and you can hear the song that songwriter Lanny Shermin wrote for AA in colaboration with the Song of Love Foundation. It is awesome. Thanks.    

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Kind Regards,

Roi LeGar

Monday, October 31, 2011

AA LeGar the Pirate. Arrgghh!!!

Halloween means there are are just five more days of radiation treatment. YESSS!

Hope fully this is our first and last Halloween at the hospital today. After today five more days left. Thanks again everyone for the support. We took some time off this weekend to just being together as a family and be low key and it was great. That is why we didnt post with our normal frequency.  Roi

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Kind Regards,

Roi LeGar

Wednesday, October 26, 2011

Please Read from German Baez the Marathon Participant!

I just wanted to share this with everyone. Thanks!

German Baez has left a new comment on your post "Run For A Cause! Let's Show Our Support For Team A...":

Hi all. I am the one running this marathon. First and foremost, let us all pray and hope for a full recovery for Andrew Aidan. As for my run, I was going to run it anyway but the best thing I ever did was to decide to use my run to help out this wonderful boy and his dedicated family. So I hope you can help me to raise some money for them. They deserve it. Some charities, you have no idea where the money is going. With this personal approach there is no doubt that the family will control the funds and use them for Andrew Aidan's benefit. I expect the run to be tough but there is no doubt I will be fueled by your generosity and compassion every step of the way. I have never run a marathon. So I am not sure how I will make out...walk, run, crawl...but I will finish! Thanks!

Posted by German Baez to Andrew Aidan LeGar at October 26, 2011 10:40 AM

Just 8 More Days

Good day of radiation treatment. Things are so far are looking up and we only have 8 more treatment days.Roi

Tuesday, October 25, 2011

breakfast after radiation. yummy

Radiation is coming to an end. Soon.

We are almost there at the end of radiation. Yesterday was a bit hectic here at the hospital but Mondays usually are. Today is much more peaceful and flowing well. Our little man is doing just great. He has really been enjoying himself. 
Roi

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Kind Regards,

Roi LeGar

Thursday, October 20, 2011

Marathon Flyer

Hello everyone!
If any one would like to spread the word with the mararthon
fundraising event we are having on Nov. 6th when German runs for AA in
the NYC marathon and would like to print the flyer in order to post at
their job, school or house of worship, please feel free to do so. If
this is the case please email me in order to email you the PDF high
resolution version of the flyer for printing.
Thanks.
Roi

--
Kind Regards,

Roi LeGar

Day 16 of 28. Almost done with RT!

Almost done with radiation we are on day 16 of 28 days. Then a bunch
of test until we start chemo in Dec. Lets pray that the tumor is
completely gone when we get his full MRI done on Nov. 28 the doctors
say that is the best case scenario after radiation. Please keep the
prayers and meditation coming. It is working. Roi

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Kind Regards,

Roi LeGar