Andrew Aidan, Our Fighting Warrior!

Andrew Aidan and his dog Beemer have been the pride and joy of their parents, Michelle & Roi ever since they were born. AA loved to take walks outside, play with his best friend Beemer and his Thomas the Tank Engine set of toys along with any other plane, helicopter, car, truck toy he can get his hand on. For those that have met him, they saw the soul of a mature adult in the body of a sweet, loving boy with a beautiful smile. He bravely battled an aggressive, inoperable, rare form of brain tumor called Atypical Teratoid Rhabdoid Tumor or AT/RT that spread to his spine as well. This type of cancer effects less than 50 children a year in this country. He has been an inspiration to us and we are sure he will be a vessel of motivation to those in similar situations. Thank you God for protecting our boy!

Thank You!
Andrew Aidan (R.I.P.) , Michelle (Mother), Roi (Dad) & Beemer

Tuesday, January 17, 2012

AA Jan 17th Update

Things Have Been Better!

Coming home this weekend ended up being a WONDERFUL idea! As was last posted AA ate for the first time on Friday.  Even though it was one meal it was great to see. He also ate 1 meal on Saturday and 1 meal on Sunday. He also had some orange juice today but did not eat. Well tomorrow is another day.  We did have to come home with IV fluids but it was well worth learning how to change IV fluids and programming the IV pump.  He was a bit more like himself, but not there yet. Today's hospital visit was a check up on his blood levels and his doctors were happy with all of his blood levels. He had a hearing test today and seems to have a lost a bit of his high frequency hearing in his left ear due to one of the chemo drugs he is getting. His doctors are not entirely concerned yet and will continue to give him the same dosage of chemo for the next round. He will go through a new set of scans and tests all over again after the next round. He also had a kidney test that we do not have any results yet of. We hope that he has suffered no damage to his kidneys,as some of his chemo drugs are known to cause kidney failure. 
Today he got a medicine for the first time that should help him in getting less sores in his mouth, throat and intestines while receiving chemo. These sores that he got during the last chemo round were the main reason he stopped eating as he did. In addition he also was given a medicine to boost his appetite because he has lost so much weight during these past four weeks and we really have to do everything to get him to eat during this next round. We have never been able to see his rib cage and spine the way we are able to see it now. We hope that this next round will be easier than the last.  We will enjoy our next 2 days off at home and then get ready to be admitted again on Thursday for the next round of chemo.
Roi

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