Andrew Aidan, Our Fighting Warrior!

Andrew Aidan and his dog Beemer have been the pride and joy of their parents, Michelle & Roi ever since they were born. AA loved to take walks outside, play with his best friend Beemer and his Thomas the Tank Engine set of toys along with any other plane, helicopter, car, truck toy he can get his hand on. For those that have met him, they saw the soul of a mature adult in the body of a sweet, loving boy with a beautiful smile. He bravely battled an aggressive, inoperable, rare form of brain tumor called Atypical Teratoid Rhabdoid Tumor or AT/RT that spread to his spine as well. This type of cancer effects less than 50 children a year in this country. He has been an inspiration to us and we are sure he will be a vessel of motivation to those in similar situations. Thank you God for protecting our boy!

Thank You!
Andrew Aidan (R.I.P.) , Michelle (Mother), Roi (Dad) & Beemer

Saturday, January 28, 2012

Back At Sloan

Well, it sure has been a hectic 24 hours for us with all that AA has been through. Thankfully he is looking so much better today. We actually have to say a BIG thank you to the Neurosurgical team at New York Presbyterian-Cornell especially Dr. Mark M. Souweidane, MD, Andrews Neurosurgeon. He did a wonderful job
re-assuring us that this procedure was the best for his current medical condition and for his long term survival. We also appreciate the PICU nurses, Anesthesiologists and PICU Doctors for watching over our boy.
Meanwhile, arriving back at Sloan feels like returning to your old neighborhood, where every face has a name and a story, a place where we really do not have to explain much because they know us, they know Andrew Aidan. It feels good and thankfully we got our old bed back, good old 926-A. It's the best. Even AA felt comfortable as soon as we walked in he seemed more relaxed while across the street at Cornell he seemed upset at everyone and everything. Over here he has had a bit more to drink and seems to be a bit more settled. We will work on getting some nice pics of him tomorrow and posting them for you. Lastly, I feel inclined to remind people of the sensitive nature of the VP Shunt AA had placed. He had this because there are issues with flow of CSF (Cerebral Spinal Fluid) through his spine and brain. The importance of CSF is amazing for the following reason. This fluid that flows up and down our brain and spine serves many functions, but one function that it serves is to cushion these two living organs from the rigors of being alive inside a human body. Good night.
Roi

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