Happy Sunday. Hope you are all enjoying today either by spending time at church, with family or relaxing. We are still in the hospital but getting better thankfully. AA has been acting less drowsy and less irritable and has been awake alot more. His body swelling has gone down as well but not fully. He hasn't had anything to drink or eat yet but was put on IV nutrition last night. It is called Total Parenteral Nutrition (TPN), it is feeding a person intravenously, bypassing the usual process of eating and digestion. The person receives nutritional formula that contains nutrients such as glucose, amino acids, lipids and added vitamins and dietary minerals. The reason he is getting this is because he is not eating or drinking and he still has mouth sores. We are also getting ready for the next cycle of chemo which starts on Friday. He needs to be as strong as possible. The doctors said we might go home soon because his counts are getting better but they usually will not send us home if he is not eating or drinking. While they just put him on TPN last evening and are already going to take him off it? He will not start eating on his own until later in the week and by then he will be on chemo again. Doctor Modak trully confuses us when he says AA can come off the TPN and be sent home tomorrow. At least our primary Dr. Lightner has spoken to the M9 fellow Dr. Forlenza about making sure the M9 team maintains continuity when taking care of AA while taking in to consideration what Andrew's Primary Doctors thinks he needs. Now we feel better because Dr. Forlenza has already written Dr. Lightner about what they would like to do with AA's next phase of treatment without making any immediate adjustments.
Today he is a bit cranky once again because he has not slept well. Last evening he was fussy when sleeping and this morning too. Something is keeping him from sleeping. We also had an EKG yesterday which was following up a previous EKG and it showed that the result was still slightly abnormal and they will keep observing him. Finally, we ask for tou prayers because tomorrow we will an ultra important MRI of his brain and spine. This scan will let us know if all of this chemo treatment is working in shrinking the tumors and id it is safe to continue on this plan.
Roi
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