Andrew Aidan, Our Fighting Warrior!

Andrew Aidan and his dog Beemer have been the pride and joy of their parents, Michelle & Roi ever since they were born. AA loved to take walks outside, play with his best friend Beemer and his Thomas the Tank Engine set of toys along with any other plane, helicopter, car, truck toy he can get his hand on. For those that have met him, they saw the soul of a mature adult in the body of a sweet, loving boy with a beautiful smile. He bravely battled an aggressive, inoperable, rare form of brain tumor called Atypical Teratoid Rhabdoid Tumor or AT/RT that spread to his spine as well. This type of cancer effects less than 50 children a year in this country. He has been an inspiration to us and we are sure he will be a vessel of motivation to those in similar situations. Thank you God for protecting our boy!

Thank You!
Andrew Aidan (R.I.P.) , Michelle (Mother), Roi (Dad) & Beemer

Monday, March 5, 2012

27 Months Ago...AA Was Born

AA, Mama & Dada On His Birthdate, 27 Months Ago..

AA On The Cover of The Inspiration Through Art Newsletter March 2012

27 Months of An Amazing Young Man And Still Fighting, Thank God!
Below is a brief description of some of the normal milestones that a 27-month old should be achieving at AA's Age...  
"Your preschooler is making important social progress. He's moved up from always playing alone, as he did when he was a baby. Now he's interested in other children. Even when the kids don't interact during their play, they're aware of one another. And it's as different from solo play as sitting in a crowded theater is from sitting home alone watching tv.

Playing with other children, even if it's parallel play, will become increasingly important this year. Kids often use this kind of play to join an activity already under way. Reserved kids may stay longer at this stage, and that's fine. You can boost your child's confidence by keeping playgroups small and familiar. Make a habit of inviting over just one or two children your child already knows. When your child is ready, you'll begin to notice more shared activity, fueled by improving language skills and a growing imagination."



What is amazing is these he was at the milestones last year before he got diagnosed. A whole year before he was supposed to be achieving them. As we look back on it now, we remember how far ahead he was in his development. Truly amazing. If he would have continued on that path he probably would be enrolled in college by now. 
The poem I posted last week of "The child's soul choosing it's mom" still resonates with me. It is amazing how most cultures believe that we have a living soul. A soul that existed before it manifested itself in our body and a soul that exists after we leave our bodies. This process of choosing the "right person/parents" to fulfill it's cosmic purpose is wonderful. I truly believe that God makes everything with a purpose and we hope that is the case here. We hope that AA did choose this path in order to full fill his cosmic & spiritual purpose, just like Jesus did. If he did, it makes me feel a bit better knowing that he knew what was to come during this journey, he knew that it was not going to be easy. There is no way that this type of disease or journey comes from God...I believe that now...I have always believed that there is A God and hope that he hears all of our prayers. Here is a verse from the bible that I have always liked, because of it's offer of Hope. At this point we will take all the Hope we can get... 
John 14:1-3
"Do not let your hearts be troubled. Trust in God; trust also in me. In my Father's house are many rooms; if it were not so, I would have told you. I am going there to prepare a place for you. And if I go and prepare a place for you, I will come back and take you to be with me that you also may be where I am." (NIV)




AA did not have a good night yesterday. He seems to be in more pain now. He spent all night in discomfort, moving his head around and putting his hands to his face and head as if he were in pain. The PCA pump he was placed on yesterday was eventually placed on continuous flow in order to help control his pain more along with some other meds to help. He now going to get a steroid to help him with some pain and swelling that he is probably experiencing. Michelle stayed up with him from 2-5am and cried each time AA threw her a "Help me mama" kiss. It was a rough night for them. We still believe that God can help AA get through this with life.  
We will keep you updated as things happen. Have a wonderful day!
Roi

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