Andrew Aidan, Our Fighting Warrior!

Andrew Aidan and his dog Beemer have been the pride and joy of their parents, Michelle & Roi ever since they were born. AA loved to take walks outside, play with his best friend Beemer and his Thomas the Tank Engine set of toys along with any other plane, helicopter, car, truck toy he can get his hand on. For those that have met him, they saw the soul of a mature adult in the body of a sweet, loving boy with a beautiful smile. He bravely battled an aggressive, inoperable, rare form of brain tumor called Atypical Teratoid Rhabdoid Tumor or AT/RT that spread to his spine as well. This type of cancer effects less than 50 children a year in this country. He has been an inspiration to us and we are sure he will be a vessel of motivation to those in similar situations. Thank you God for protecting our boy!

Thank You!
Andrew Aidan (R.I.P.) , Michelle (Mother), Roi (Dad) & Beemer

Friday, March 2, 2012

Andrew's Overture


The great gift of family life is to be intimately acquainted with people you might never introduce yourself to, had not life done it for you. –Kendall Hailey

The days are all but a blur in the present. It feels like we are living one very long day at a time. It reminds me of a theory described in Quantum Physics known as the Time Continuum. The Time Continuum is the concept of Space, Time and Energy weaving themselves together. Each has its own properties and behaviours but one cannot exist without the others. Theoretically, each of them has no beginning and no end, and they are all one entity but are changeable, depending on different phases of energetic matter in which they appear and decay together (http://www.grandunifiedtheory.org.il/Book6/html/Time_continuum.htm). Our Space, is a magnanimous sphere of hope that hosts the wonderful ballet that is performed by our souls on a daily basis as we saute (French for "jump" & also a common ballet move) into the beautiful moments of our Time. Our Time is best described by the wonderful memories that we have with AA. Memories that form a living collage of laughter, happiness, sorrow, fear, peace and endless questions that are ever present and never ending. An infinite catalogue of vivid experiences that stream through our very veins and nerves at light speed and builds into our Energy, our love for Andrew Aidan. An amazing love that has been inspired by his purpose in life. A love that we always envisioned and are lucky enough to have experienced. Our boy is amazing and we have seen how wonderful he is through the symbiotic (a similar relationship between interdependent persons or groups) relationship we have with him, but also through the impact that he has had on so many of you, AA's friends, family and new friends acquired during this journey. It is a true testament to the glorious impact he has had while on this planet and on so many people. 
Our Warrior had a good day today, we were fortunate enough to have him spend a good amount of time awake today. He watched his cartoons, ate some more mashed potatoes and drank water. He even did some of his signature dance moves while watching his shows. We were also happy to have him interact with us as well. Dada even had the chance to take a nice 2 hour nap with AA. A ritual we have mastered so well since he was young. Those naps are always the best. There is nothing like waking to the sight, touch and smell of one that is so intimately connected to your soul. He even asked Dada to pray before he went to bed, something we taught him in December. A tool I am sure will suit him well in Heaven.  We also had the honor of having some friends and family come and visit him. It sure did help us to distract our minds and it was great to see the love that exists for AA. Not to mention he did not feel bothered by the different people. 
We would like to invite anyone that would like to see AA to come by the hospital and do so, but there are some conditions that need to be followed. The hospital has been very gracious in allowing us to have many visitors come see AA because he is very much loved here, but we have to consider the other critical patients that are on this floor. 1) If, your or any one you know has been sick in the last couple of days, you should not come because it is a serious risk to the other families fighting cancer. 2) The hospital is a place for recuperation and regeneration, we ask that you please act accordingly and be as subtle as possible to our fellow patients and cancer fighters. 3) We ask that you notify us of when you would like to come in order to coordinate the flow of people accordingly. We can not have 20 people at a time here because there is no waiting room on this floor, groups of 2-4 people is the most that we can have at any given time. As a result, we would love to have you see him but just be patient. Write us a text message if you have our cell phone numbers telling us when you would like to come by. Or you can just shoot us an e-mail (r.legar@gmail.com or m.legar@gmail.com) with the same info and we would do our best to make it happen. We are staying in room 937 at Memorial Sloan Kettering Cancer Center located at 1275 York Avenue (Between 68th & 67th Streets) NY, NY 
We love you all very much and look forward to seeing you soon. God Bless!


Roi & Michelle

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